I called my Mom today to tell her about our friend Yael we met at the family home who’s boyfriend’s son died.  Amir was 27 years old– battling cystic fibrosis and  awaiting a match for a double lung-liver (possibly kidney) transplant at UPMC Presbyterian Hospital. He had lost his twin brother from the same disease just two years earlier.   Read more: The Jewish Chronicle – Give a helping hand

I am so sad for his family it’s hard to understand this kind of loss! A young person with so much ahead of him and for a father who has lost his only two children.

Our son Kyle - 1984

Our lives are consumed daily with chores, money worries, cleaning, doing homework and caring for those we love. It’s hard to imagine that for some all of that can change so quickly. Where life becomes still and present– a normal day is being surrounded by hope, life and fear. Where a smile and a home cooked meal can make a huge difference in feeling normal.

At the family house we often cooked together in a huge kitchen filled with families coming in from a day of visiting their loved ones in the hospital. Everyone was so kind and so supportive. Time can move very slowly where each moment becomes a gift of hope or a sense of despair

As a young Mother at the age of 24, I was wondering if my newly born son Kyle was going to live– for three weeks we visited our son daily at the hospital in hopes that we could bring him home and start our new life. That didn’t happen for us. I remember the last time I walked out of the hospital on January 23 without my son.  I felt so completely empty– I could feel my body collapsing at the door and not wanting to take the final step out of the hospital.  I wondered if I would ever move forward in my life with this loss. Of course we did… we grew stronger, we grew wiser and we choose how this will affect us in life.

I am grateful I was able to have the experience of donating my kidney and meeting all of the families at UPMC.  My heart goes out to Amir’s family and all the other families waiting for organs.

May we each be kind and giving to one another.